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I’m No Superwoman

Another twin mamma doing her thing and smashing it with the help of her loved ones for support.

beauty in grey days

Lots of friends and family say thing like “twins, I don’t know how you do it”or “twins, I can’t imagine”. I’ll tell you exactly how I do it, and spoiler alert, I’m not a one woman show. I will say this…I don’t mind patting myself on the back for choosing the best partner imaginable, but other than that, I am just fortunate.

My husband, my rock, scored a job that allows him to work from home. Now, Marv does have to do a little travel and has appointments that take him away from home, but it isn’t often, and when he’s home, he’s amazing. His mama raised him right. Marv does everything for the babies and he even washes my pump parts and all of the baby bottles at the end of the day. He actually has a very sweet bath time ritual for the boys, and I love that…

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Mummy wins vs Mummy fails

It was this time 3 years ago that my hubby and I announced our very long awaited pregnancy news and for it to be twin news we were just taken aback. I was very much at the stage where I never thought I would be lucky enough to become pregnant with 1 child and here we were announcing 2!

In my short time as a mum I have experienced my fair share of high five Mummy win moments and I have also experienced the epic mummy fails. These are all part of the journey to parenthood. Wins and fails alike should be celebrated pretty much because it shows at least we are trying. Ironically, it’s more likely to be the fails that allow us to bond with other parents with the mantra ‘there is no such thing as a perfect parent’.

On social media pages such as Facebook and Pinterest you will find the perfect parent brigade in their masses telling and showing us all of their Mary Poppins style ideas that they have done with their children already that day and it’s only 10am. Whereas, I’m very lucky if I have fed my boys and changed them out of their pj’s by that time in the morning. 😃 Sometimes though, their ideas just might work for us normal folk.

At the weekend I decided I wanted to do something different for my boys lunch rather than the mundane routine of our norm. I had seen a few different posts about chopping up hot dogs and spiking them with uncooked spaghetti. Well you would never believe it but it actually worked! I did mix in a little tomato ketchup so it wasn’t as dry but my boys loved it. I was met with a chorus of Yums and mmmmm’s as they were eating it. It sounds sad I know but usually with toddlers most of their food ends up on the floor. Not one bite of this simple lunch was spoiled. To say I was Well chuffed is a bit of an understatement. My husband even gave me a high 5! I took it, I didn’t know or care if there was a sarcastic undertone to it. I was and still am delighted.

Now for this one win I have had my share of fails, including the good old initiation of being peed, poohed or vomited on! Just the day before my epic 😃lunch idea the boys and I were attending a fellow twin mums boys birthday party. I was semi-prepared as I had bought the boys their cards presents and even wrapping paper. I’m a gift bag kinda gal but thought to myself ‘no, I’m gonna do it right’! Of course I did leave writing the cards and wrapping the presents until last minute which turns out to be another notch in my fail column. Most twin mums are disappointed if their twins share a birthday card, it personally does t bother me but can see their point. The children may be twins but they are 2 individuals and as such deserve to have their own card, after all they already have to share their birthday with each other. I bought the boys 2 matching cards. I didn’t initially pick up 2 identical cards then thought I’ll get them different cards but have a matching theme. So Both had peppa pig cards. Turns out I should have stuck with the 2 identical cards. We were already running late so no time to nip to shop and correct my mistake. Luckily for me my friend laughed and understood my mistake.

Even in my personal life I have experienced the wins and fails of life. Doesn’t all come down to whether you have kids or not. You can be a numpty whether you are a mum or not. Last week I had one such occasion where it started out a win, quickly turned into a painful fail but then turned itself around into a win again. I thought to myself since I was going back to work I would put on a charcoal face mask and use the charcoal powder to whiten my teeth. I did not know the face mask is only supposed to be used on the t-zone area! So during a live Facebook broadcast I took the mask off and let’s just say I’m lucky I have any eyebrows left! Positive though is my skin looked amazing.

Life is all taken very seriously nowadays. We should celebrate the little things and laugh at the failures. At the end of the day it is through our failures we learn and become a better person. Let me know what wins or fails you have experienced. It might just make one person feel better about their day.

Stay Cool

Scottish Twin Mamma

Xxxxx

What you should never say to a twin mum!

I’m not gonna lie. I always wanted twins. It was always something I felt I would do. Be a twin mum. If you look on social media you will see loads of articles directed towards that woman who also wants twins and it gives what they think is helpful hints and tips on how they think the best way to conceive twins is. FYI, there is no science behind claims that different sexual positions or changes in diet will make you more likely to conceive twins. When a stranger approaches you and starts bombarding you with questions you will inevitably get the same questions just worded differently over and over again. To this day, this has never bothered me but by listening to my twin mum peers it seems it can annoy and upset most mums of twins. So it’s probably best just to avoid them all together.

  • ‘I really hope I have twins one day

By saying this it’s just like you are saying that having twins is a breeze or a walk in the park. This was something before having my boys I never considered. I did want twins and I knew it would be difficult. It never came from a bad malicious place so I assume when strangers say it their intentions are also good. Consider this though. That stranger you approached in the supermarket has just had the night from hell. She has had to play swapsies with her children all night to attend to the baby with the most needs at that time. She has had no sleep and no help with the constant round robin of feeding, changing nappies, changing clothes due to wetness or sickness, singing lullaby’s to help settle baby to sleep. She realises first thing in the morning that she has ran out of essential groceries so attempts to nip out to shops still wearing her own clothes that had been peed on and vomited over. All she wants is to get in and out of the shop as quickly as she possibly can and then you innocently make this remark. This will make that physically and emotionally tired mum feel like she is failing. It should be easy. Everyone wants twins so it can’t be the hard option. Can’t it? Why am I not finding it easier?

  • ‘I know what you mean. I have 2 kids a year apart and it’s just like having twins!’

I think out of all the passing comments strangers have made to me, this has been the only one which really got my back up. No it bloody Well isn’t ‘just like having twins’. Unless you have had twins then go on to have 2 singletons 1 year apart then you will never know what it is like having twins. Just as I will never know what having 2 children very close in age feels like. Both come with their own set of bonuses and Both come with their own set of negatives. You will never know the heart wrenching feeling of picking one crying starving child over the other crying starving child. You will never know what it is like to try and juggle 2 colicky babies at the one time. You will never know what it is like to be trapped like a prisoner in your own home for weeks on end because when they become mobile it is near physically impossible to take the twins anywhere on your own, as they will inevitably decide to run in 2 opposite directions at the one time and be of an age where they don’t know what stop means or worse, they are an age where they just choose to ignore you. I can’t say one scenario is harder than the other as I haven’t experienced Both, but do you do what? It isn’t a competition to see who the most hard done by mother is. Although some women seem to thrive on competitive agendas. I will never know what it is like to be pregnant whilst caring for a young child, I will never know what it is like to attempt to entertain 2 children who are a year or so apart in development. Maybe as a community of mothers we could try and support each other rather than tear each other down.

  • Are they natural? / Do Twins run in your family?

Oh dear god! Where to start with this one. I personally don’t have an issue with people asking if twins run in the family but a stranger is pretty much asking you about your sex life and fertility status. The ‘are they natural?’ I always wanted to say ‘no, actually my boys are plastic, but thanks for asking.’ Would you approach a stranger of a singleton and ask if the baby was natural? Or even conceived ‘naturally’? No, you wouldn’t because it would be downright rude. Back in 2015 Elton John called for a boycott of fashion house Dolce & Gabbana after the designers labelled children born via IVF ‘synthetic’. My boys were only around 3 weeks old when this hit the press and to say I was disgusted was an understatement. How dare anyone criticise these miracle babies worldwide. I truly believe the children conceived with the help of fertility treatments are miracles as they most likely would not have been born if it wasn’t for the advances of science. Yet, if it were up to them they would deny millions of people the chance to become families due to them feeling it is synthetic. No pal, I think you will find it is the material you use on the runway that is synthetic, not my children who are very much real flesh and blood.

I have always been very open with family, friends, work colleagues and the odd stranger about my fertility journey but most people are not like me. Most people like to keep their personal business to themselves. So what gives people the right to ask such personal questions? I can understand that twins and higher ordered multiples bring out the curiosity in people, even though there are more multiple births documented now than ever before is partly down to the advances in science and the availability of fertility treatment. However, the rise in multiple births could also to be attributed to older mums. Many women do not have their children now until much later in life, this can be due to many reasons, however, nature likes to throw a curve ball and if your older than 35 you are more likely to conceive twins because your body has produced 2 eggs in the same monthly cycle. In 2006, almost 5% of births in women over the age of 35 were twins and this increases to 20% for women over the age of 45. Comparatively, only 2% of women aged 20-24 had twins without the support of fertility treatments.

“So no more babies for you then?’

As it turns out I personally do not have a choice with this one due to the afore mentioned fertility issues, in saying that, if I could afford private fertility treatment I would go for it. I would love a bigger family. In society nowadays it is assumed if you have 2 children that your automatically done procreating. Especially, if you have 1 boy and 1 girl. Not even a generation ago bigger families were the social norm. My husband is the youngest of 7 kids with both his parents also coming from large families. I don’t know how we got to a point where seeing a family of 3 or more children is now considered large. Who has the right to say how many children any one family should have? Again, I go back to it is no ones damn business other than the couple that is having the family. There is no magic number of children to clock up to to get the perfect family.

“Twins? I couldn’t imagine anything worse/I wouldn’t wish that on my worst enemy!’

Cant believe I actually had to write this one down. I have had this said to me by strangers on more than one occasion as have the majority of my twin mum friends. Now for the rest of my points above I could say the strangers were genuinely well meaning and didn’t intend for their comment or question to come across as malicious but with this one??? How else am I or any other twin mum supposed to take it? It’s the hardest job I will ever do in my life, but it is the most satisfying job in the world. Just when you think you have reached your breaking point and can’t possibly take anymore crying, sleepless nights, double sickness bugs and the like those 2 wee innocent faces will look up at you with all the love they have in the world and it will melt even the coldest of hearts into a big bowl of mush. Just one look can do this to you. You have no idea how many times a tiny smile or hug has brought me back from the brink of despair. These closed minded folk don’t deserve the love and happiness that twins can bring into your life. They don’t have what it takes to be undercover superheroes. 😂😂😂

Stay cool

Scottish Twin Mamma

Xx

What not to say to a parent whilst their baby is in the NICU

I am by nature a very romantic person. I always dreamed of my big white wedding and having 3 kids. 2 girls 1 boy. I dreamed of everything just short of a white picket fence. Now being a grown up I knew that life isn’t like a romantic movie and we don’t always get everything that we dreamed of, somehow though I always thought that certain aspects of each dream would come true.

I always wanted to spend time getting the nursery ready for my child and having all of my family together for my baby shower. I had visions of leaving the hospital loaded with my gorgeous wee baby, multiple balloons and gift bags that eager and generous family and family had brought with them to visit my cherub. Coming home to a full house decorated with balloons and bunting to celebrate this new tiny life we had brought into the world. As with any mother to be, I also had my birth plan already in my head waiting to discuss it with the midwives. Turns out the universe had other plans for this girl who lived in a romantic bubble. After 10 years of various fertility treatments we finally conceived who would turn out to be our 2 wee miracle babies. After a very complicated pregnancy. The boys were thrown into the world at Just 25 weeks gestation. I always joked that I had to wait 10 years for them but the wee to-rags couldn’t wait 9 months on me. I had to leave the hospital 3 days after their birth with no babies, no car seats, no flowers, no balloons, no gift bags, no full house, no decorations and certainly no celebrating. My heart was broken, I didn’t want to leave my boys behind in the hospital. I wanted them to be with me, I was their mother and they should be with me and my husband. After the boys fight in the NICU they finally came home. Yet still no balloons etc. They didn’t even come home on the same day. It was as if the world had made it its mission to turn everything upside down.

Throughout these months there were many comments made to me and I can guarantee you each and every single comment came from a good place. A place of love and compassion. It’s just as humans our words tend to fail us at times of worry and grief. So either the wrong thing is said or worse. Nothing is said at all.

So I have compiled a list of things that you should never say to a parent who’s child is in the NICU. This list is not exhaustive by any means, if there is anything you feel that should be added then please feel to leave a comment and tell me what else should be there.

  1. At least he will be smaller for longer and you get to have a cute newborn for longer than other parents.’ I genuinely didn’t know how to respond to this one. But I could tell you one thing. I’d have given anything to have my boys born at a regular newborn size. That would have meant my boys were born at term and most probably healthy.
  2. ‘Oh, they just couldn’t wait to meet their mummy and daddy’ now as I said earlier, I have joked about the 10 years 9 months ratio before but really until you have watched your baby turn blue because they don’t know how to breathe by themselves yet then you will never know how hard it is to hear. They are basically saying your baby chose to fight for his life so he could just nip out and say hello.
  3. “You can’t keep wrapping them up in cotton wool’ Boy I heard this Time and Time again. Especially in the early months when the boys were on oxygen, now it seems to be rearing it’s ugly head again now they are nearly 3. As with any parent I will always put my children first. Yet people seem so shocked when you change plans at the last minute due to the wee ones being sick or refusing to go to a party where there are sick people just in case my boys get ill. If I hear one more Time ‘it’s just a cold’ I swear I will scream. “Just a cold’ could lead to breathing issues such as RSV, which could lead to my boys being incubated with a machine breathing for them, which could lead to death. So no, to a preemie mum, there is no such bloody thing as ‘Just a cold’
  4. “Don’t worry, everything will be ok’ As with most comments on this list, this is said from a good hopeful place. That being said they can also brush aside the very real fears that parents face. Nothing can prepare you for the first time you see your precious little bundle with more tubes coming out of their body than you thought could ever be possible.
  5. ‘I take it you are breastfeeding?’ This one was a very sore topic for me. I felt like a big enough failure that I couldn’t get pregnant without help, then I could make it full term, but to then be told I was not allowed to breastfeed after the nurses made such a big deal to tell me how important it was for my sons that they be given breast milk just made me feel so so low and like the biggest failure ever. I thought maybe I wasn’t supposed to be a mother after all. I still feel tremendous guilt over this to this day. I know deep down that a fed baby is best. I also opted for donor breast milk to give my boys the start I felt they deserved. I didn’t want them to be punished for my failures. It will take a very long time, if ever for me to completely forgive myself. So please, don’t ever just assume. Unless you know the circumstances, don’t ever just assume.
  6. “Wow, 1lb 7 and 1lb 11? You must have just sneezed and they popped out? You are so lucky you didn’t have to give to birth to 2 full size babies!’ I still find it difficult to see this comment as anything other than insensitive. Actually, this comment makes me want to scream. WTAF?????
  7. “At least you got to miss that really big uncomfortable stage’ I would have given my right eye to be big sore and uncomfortable to stop my boys from know the pain of needles and tests before they knew the touch and cuddle of their mum.
  8. “At least you get to go home and get a good night sleep.’ You never want to leave your baby in the hospital but sleep? Hell, when or if I ever get a good nights sleep again I will let you know.
  9. “When will the boys be normal and catch up with other kids their age?’ What is normal anyway? How dare you say my boys aren’t normal. Like any child they will do things in their own time. I will love them unconditionally no matter what their developmental age is. There are no crystal ball, NICU babies progress over the years at their own rate. The fact that they are alive and breathing is miracle enough. They will reach their own milestones in their own time.

10.Thank god that is over and done with.’ We are nearly 3 years down the line now and our journey still isn’t over. Many people assume that once baby is home that the NICU is a distant memory. However, many preemie babies are often left with long term health difficulties. Some of these will resolve over time, but many can be life long complications. The boys are at this stage just now. Many people feel they should be just like their peers and I have even been told to my face that the boys aren’t anything special. They are children and all children are special. I agree all children are special but not all children have had to face the uphill battles like my boys so yeah my boys are god damn special. We will be dealing with health issues due to their Prematurity for many more years to come if not forever. Our lives have been changed so much by having the boys and the likelihood is we will need to adapt and change our lives to suit our boys forever. Do you know what? I wouldn’t change the boys for all the tea in China.

Instead maybe say congratulations, celebrate the birth of a new life. Don’t be scared to do this because you fear the wee baby might not make it. As true as it is that not every baby makes it home from the NICU it is important to remember that every baby deserves to be celebrated. If you don’t know what to say, just say that. Don’t stay silent or worse say something that could be deemed as insensitive. Tell your friends you will be there for them whenever they want to talk. Make them a dinner for coming home from the hospital or offer to help with housework. Let them know that they are the most important people in their babies lives.

I wouldn’t wish our NICU journey on our worst enemy. If someone you know is currently going through their own NICU journey have a thought about what I have written above.

Stay Cool.

Scottish Twin Mamma

World Prematurity Day 17th November 2017 — Triggering PTSD

Today is a very significant day for parents of premature babies world wide. As with many health issues you can find support groups on social media platforms such as Facebook etc personally I am a member of a few groups aimed towards anxiety, premature birth and multiple birth. It is a well known fact that multiple births are high risk pregnancies and a high percentage end with the babies being born early. Usually the more babies are there, the earlier the babies are born. What isn’t discussed as often is Singleton babies born too soon. According to The World Health Organisation (WHO) there are sub-categories of pre-term birth, based on gestational age.

  • Moderate – late preterm (32 to <37 weeks)
  • Very preterm (28-<32 weeks)
  • Extremely preterm Aka micro preemie (<28 weeks)

My boys were born at 25 weeks gestation. Lewis was 1lb 7ozs. (652grams) Logan was 1lb 11ozs (765grams)

Of the 1 million preterm babies who die every year it has been reported the 3/4 of these babies could have been saved if they had access to proven and usually inexpensive care, such as warmth, breastfeeding support and basic medical care for breathing difficulties and infections. Just let that sink in. 3/4 million babies could be saved every year. That one statistic is enough to prove raising awareness of preterm birth is essential. By raising awareness we are able to raise funding that can go towards research to prevent as many preterm births as possible. Although, as a preemie mum it can be so so difficult to see all the pictures of tiny babies with breathing tubes fighting for their life in incubators I understand the importance of getting those images and stories out there. If you read blogs or articles that take you through someone’s NICU journey you will find most of the mums state that they had very little knowledge of preterm birth and it’s causes.

My case was a bit different however, I grew up knowing that the miracles of science could save a baby born so early. My older brother was born at 26 weeks gestation in 1977. The doctors didn’t give him a real chance of survival. He weighed less than a bag of sugar. He is now 40 years old with his own family. My poor mum then went into labour with me around the same gestation, however, this time they knew that there was a chance of this happening so she had been monitored very closely throughout her pregnancy. So with some medical interventions I lasted until mum was 30 weeks pregnant. It was always thought that spontaneous preterm labour was not heredity, yet recently WHO have stared there could be a family link.

I have tried to speak about my experiences of preterm birth with my boys in this blog but I have successfully managed to avoid my personal feelings and speak more about the facts. This has been one of my biggest personal demons. I’m like an emu. When life is stressful I put the biggest smile on my face, pretend to the world that everything is A-ok and bury my head along with my problems in the sand. I recently discovered this only works for a certain length of time then all those fears, feelings and anxieties rush to the surface and there is no way to hold it all back. The last few months have been like a living hell and I’m sure my family who are my biggest support network will agree it wasn’t pleasant for them either. I went from being a happy bubbly person to someone who took every tiny thing to heart and would explode in a rage to defend herself when in actual fact I wasn’t being threatened in the slightest. Some studies suggest that up to 71% of NICU mums go on to develop PTSD. Is it any wonder though? The body and mind go through such a massive invasion at childbirth and that is when mum and baby are in good health. Now add in additional stressors such as traumatic birth, premature birth, complications to mum and baby.

So today is National Prematurity Awareness Day. Please take some time to pray for and/or send Well wishes for those babies who are still currently riding that NICU rollercoaster.

Think of the babies born too soon who didn’t get to go home from the neonatal unit.

Think of the babies who fight life threatening illness every winter due to their lungs being damaged from Prematurity.

Think of the babies who due to being born early and fighting for life daily in the early stages are now left with physical, cognitive or learning disabilities.

Think of the parents who fight along side their little warriors praying to take their place and not see their little miracle suffer everyday.

Think. Just think. The fight doesn’t end for many parents and babies when they leave the NICU and often this is a time where the parents need more emotional support than before. The fight can continue for years and even be lifelong.

To all the babies born too soon, I salute you.

Stay Cool.

Scottish Twin Mamma.

World Prematurity Day 17th November 2017 — Triggering PTSD

Today is a very significant day for parents of premature babies world wide. As with many health issues you can find support groups on social media platforms such as Facebook etc personally I am a member of a few groups aimed towards anxiety, premature birth and multiple birth. It is a well known fact that multiple births are high risk pregnancies and a high percentage end with the babies being born early. Usually the more babies are there, the earlier the babies are born. What isn’t discussed as often is Singleton babies born too soon. According to The World Health Organisation (WHO) there are sub-categories of pre-term birth, based on gestational age.

  • Moderate – late preterm (32 to <37 weeks)
  • Very preterm (28-<32 weeks)
  • Extremely preterm Aka micro preemie (<28 weeks)

My boys were born at 25 weeks gestation. Lewis was 1lb 7ozs. (652grams) Logan was 1lb 11ozs (765grams)

Of the 1 million preterm babies who die every year it has been reported the 3/4 of these babies could have been saved if they had access to proven and usually inexpensive care, such as warmth, breastfeeding support and basic medical care for breathing difficulties and infections. Just let that sink in. 3/4 million babies could be saved every year. That one statistic is enough to prove raising awareness of preterm birth is essential. By raising awareness we are able to raise funding that can go towards research to prevent as many preterm births as possible. Although, as a preemie mum it can be so so difficult to see all the pictures of tiny babies with breathing tubes fighting for their life in incubators I understand the importance of getting those images and stories out there. If you read blogs or articles that take you through someone’s NICU journey you will find most of the mums state that they had very little knowledge of preterm birth and it’s causes.

My case was a bit different however, I grew up knowing that the miracles of science could save a baby born so early. My older brother was born at 26 weeks gestation in 1977. The doctors didn’t give him a real chance of survival. He weighed less than a bag of sugar. He is now 40 years old with his own family. My poor mum then went into labour with me around the same gestation, however, this time they knew that there was a chance of this happening so she had been monitored very closely throughout her pregnancy. So with some medical interventions I lasted until mum was 30 weeks pregnant. It was always thought that spontaneous preterm labour was not heredity, yet recently WHO have stared there could be a family link.

I have tried to speak about my experiences of preterm birth with my boys in this blog but I have successfully managed to avoid my personal feelings and speak more about the facts. This has been one of my biggest personal demons. I’m like an emu. When life is stressful I put the biggest smile on my face, pretend to the world that everything is A-ok and bury my head along with my problems in the sand. I recently discovered this only works for a certain length of time then all those fears, feelings and anxieties rush to the surface and there is no way to hold it all back. The last few months have been like a living hell and I’m sure my family who are my biggest support network will agree it wasn’t pleasant for them either. I went from being a happy bubbly person to someone who took every tiny thing to heart and would explode in a rage to defend herself when in actual fact I wasn’t being threatened in the slightest. Some studies suggest that up to 71% of NICU mums go on to develop PTSD. Is it any wonder though? The body and mind go through such a massive invasion at childbirth and that is when mum and baby are in good health. Now add in additional stressors such as traumatic birth, premature birth, complications to mum and baby.

So today is National Prematurity Awareness Day. Please take some time to pray for and/or send Well wishes for those babies who are still currently riding that NICU rollercoaster.

Think of the babies born too soon who didn’t get to go home from the neonatal unit.

Think of the babies who fight life threatening illness every winter due to their lungs being damaged from Prematurity.

Think of the babies who due to being born early and fighting for life daily in the early stages are now left with physical, cognitive or learning disabilities.

Think of the parents who fight along side their little warriors praying to take their place and not see their little miracle suffer everyday.

Think. Just think. The fight doesn’t end for many parents and babies when they leave the NICU and often this is a time where the parents need more emotional support than before. The fight can continue for years and even be lifelong.

To all the babies born too soon, I salute you.

Stay Cool.

Scottish Twin Mamma.

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North Lanarkshire council aiming to take more services away?

Just received this through the door for Both my boys. As we are 1.3 miles away from the primary school this will directly effect us. To say I’m angry is an understatement. What are our taxes actually used for??? It seems to me that North Lanarkshire Council are all about reducing their costs so they can pocket even more money for themselves through wages and expense accounts. It is absolutely disgusting. Due to fraudulent behaviour from these fat cats to sit in offices and dictate how to take even more things from the poor poverty stricken working class! It was due to this stealing behaviour all baby rooms in North Lanarkshire are due to be closed in December!!! To the detriment of children who rely on and require these services! My boys being 2 of the babies who needed this service since they were 11 months old and if it hadn’t been for the caring and hardworking staff of the Nursery then their development wouldn’t be at the level it is and I would most likely be an inpatient!

Please let me know if any of what I have said is inaccurate but this is all true to my knowledge at present.

@nlcpeople #youwalktoworkinallweathers

Little terrors

The boys are now 2 years and 9 months old. Developmentally they may be experiencing delays but one thing that hasn’t been delayed any is the terrible 2 tantrums. Omg they can be epic and over the tiniest little thing. I have been told by other parents that with regards to tantrums the worst is yet to come but I don’t see how it could get any worse. Like, seriously!

We were car shopping st the weekend and in a moment of wisdom I decided that we didn’t need their pram. The boys love walking and can take our hands. In reference to one of my fav movies. ‘Big mistake, big, huge mistake’. It all started out so lovely. Hubby and I walking around car lot with a boy each hand in hand. Initially it felt great. Like yeah, we got this. We can be a normal family. Well it soon turned South and that’s when it felt like all hell broke lose. The boys were happy until we walked in a different direction than they wanted to go. Then the screams of the beginnings of tantrums began.

Both boys have this wonderful knack of just dropping to the floor whenever they don’t want to go your way. You might think well what’s the big deal in that? I’ll tell you. They are both over 2 stone each and when they fall they put their whole body weight behind it. Now recently Logan suffered from a pulled elbow otherwise known as toddler elbow. This is when the ulnar dislocates from the elbow. So we have to be very careful and make sure we take him by the opposite hand. Neither hubster or myself want him to go through that again so we have no choice but to let him go. Meaning he might end up head first onto the ground. Also due to my chronic back issues and my own arm and shoulder issues if I have a boy on my right arm I have no choice but to let go as my arm just isn’t strong enough to hold on and it leaves me looking like a monkey with right arm drooping low. Hubby just popped Logan on his shoulders. Job done. Baby happy no more screaming. However, I had Lewis and during one of his many escape attempts got away from me but was so concerned with looking back to see where I was ran head first into one of the cars for sale. My anxiety was high anyway and this Just put me over the edge. I was full of what if’s? What if the salesmen were moving cars around and he had gotten away from me he could have been knocked down? That was my main worry. So they were picked up and carried into the showroom where there was a seated area and a cafe. I had brought a bag of goodies just in case we needed to tame the ferocious beasts but we made an epic mistake. You know the one in horror movies were you shout at the screen and say don’t be so stupid! We decided to split up! Now looking back it’s funny. How could we make such a rookie mistake? So I stayed with boys in cafe as hubby had a wander outside. No amount of food juice or general goodies was gonna keep these 2 wild boys in one place. Who knew car showrooms echoed as much?

I was praying hubby would move his ass and get back quickly, of course it felt like a month had passed since I last seen him. He came back just as I had grabbed Logan and one of the salesmen had grabbed Lewis – yes they like to run in opposite directions and at the same time so it makes you need to split yourself in 2.

We casually left when hubby returned as if ‘yeah we were always leaving now’. Not the 2 little dictators have told us enough is enough and we have to leave that it actually was. Lol.

I feel immense guilt when I get upset with the boys for not being like other 2 year olds. Then again the boys aren’t your average 2 year olds and what is normal anyway?

I’m sure the wee bisims have given me a plethora of extra grey hairs this weekend. We didn’t even have a proper look st the cars but for the most part the boys had fun being the little terrors we love and adore.

Stay cool

Scottish Twin Mamma

World Prematurity Day 17th November 2017

We are coming ever closer to a day that is very close to my heart. National Prematurity Day 17th November 2017. However, in the UK we raise awareness the whole month through. The charity Bliss ( Twitter – @blisscharity ) are this year focusing on Prematurity and what it means to you.

With 1 in 10 babies being born premature worldwide we need people to know what obstacles babies and parents come across each and every single day. Giving birth to a preemie baby has a massive ripple effect that’s not just felt by parents but siblings grandparents friends and even work colleagues. In the UK alone 95,000 babies are born premature or sick. Being born far too soon means the baby is at higher risk of longterm health problems such as Cerebral Palsy and even at a higher risk of requiring special education at school. This fact is particularly true for my boys just now. Logan was stuck on a ventilator and no matter what the medical professionals attempted they couldn’t wean him off it. Everyday spent on a ventilator damaged his lungs further and brought up more health risks. The consultant spoke to my husband and I about giving Logan steroids in order to get him off his vent. Seems a logical solution – go for the treatment that will take away the ventilator, This came with a massive but though. The steroid treatment meant that Logan would be at higher risk of developing cerebral palsy, this was magnified by the fact he had suffered a brain bleed at birth and was at risk of cerebral palsy due to his Prematurity anyway. The discussion we had that night when we got home was just awful. We felt like we were trapped between the devil and the deep blue sea. In any event, we decided to be proactive, charge ahead and deal with the consequences as or if they arose. Logan is now 2 years and 9 months old. This is where we are seeing his cognitive development is not where it should be, even giving him grace for his Prematurity he is no where close. So this has started the discussion between his health visitor, speech therapist and nursery personnel that they feel he may be better suited to a quieter, smaller learning environment with specialist teachers. This is not to say he won’t ever catch up it is just to give him the best chance to catch up and attend a mainstream primary school. I was also worried that even though he was walking that he may have a milder level of cerebral palsy. He walks with his arms flapping about in the air with no purpose. He seems to have hyper mobile joints especially his elbows and shoulders. He also a very clumsy boy and will fall over very big obvious obstacles. The health visitor seems to think this is due to a sensory perception disorder (SPD). So life is very much up in the air with regards to the boys cognitive abilities. All I know is I have a very supportive family and no matter the outcome those 2 little miracle lion cubs will be fully supported and loved more than the world by everyone.

On our first day in the NICU the nurse looking after my boys explained that this is day one of a rollercoaster journey. Whether your journey is days, weeks or months you will be pushed to every physical and emotional limit you have. Just as you feel you couldn’t possibly deal with anymore along comes another dip. Yet everyday you get up, get ready and sit by the side of the incubator of the most precious wee warrior you know. Just knowing that they are fighting hard is what gives you the strength to carry on. This little person who you made and brought into this world yet haven’t been allowed to touch never mind give a cuddle is what gives you the courage you need to continue on.

We spent a heartbreaking 118 days sitting Vigil at the bedside of our little lion cubs. Willing them on, celebrating every gram of weight gained and every ml of milk taken, until we were given the news that we could eventually be a family together at home. I remember rooming in with my boys and being terrified. Even though we were still in hospital I was their sole care giver. My husband was still working away through all of this with the hope of taking his paternity leave when the boys finally made it home. It was like a military style operation organising feeds, medications, nappy changes and oxygen and that was for just one baby never mind the two I actually had.

The thing I didn’t realise is that nearly 3 years later the rollercoaster would still be going up down and roundabout. I thought that ended once you left the NICU. Nope. It certainly doesn’t.

I have many many stories of our time in nicu but for now I will leave it at that. This has taken me quite a few days to write as even though a lot of Time has passed it is still very raw in my heart and I get upset thinking of my wee guys being so ill.

Please feel free to share your experiences of Prematurity or your child being born unwell with me. Together we can bring awareness to an issue no one thinks about unless it happens to them. We need to highlight the issues and get funding for research so other parents and babies don’t need to go through what we have experienced. Even though our journey was man extremely difficult one, my family had a happy outcome. Unfortunately, not every baby who is born early or unwell leaves the NICU. Some babies fight the good fight but the angels take them to a better place than this cruel world. There are also some babies who get to leave the NICU, go home and then due to medical complications of Prematurity become very unwell and pass away months or even years later.

Please keep those babies and parents in your hearts and prayers. Light a candle for them on the 17th November and raise awareness of a cause very close to my heart.

Stay cool.

Scottish Twin Mamma.

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